390 replies to this topic

[Nemeweh]

Teehee!!




She's doing really well. She's had some issues with the chemo this month, but it's a good thing... her counts were SO GOOD, they upped her dosage, which caused some side effects. But they were little ones, like not wanting to eat a lot, and her feet go numb for a few days after treatment.

She's gotten super comfortable with the infusion center visits, too. She likes to help access her port (gross), and transfer her blood to the vials (Creepy). It's a pretty equal mix of creepy and awesome.

We've got a couple more infusion center visits next month, and one lumbar puncture, but then I think 2 or 3 weeks totally off

I say keep encouraging that behavior. That's how she'll end up being Dr. Baby.


But Yay! for her good prognosis!!

[Krish]

That is fantastic!!!!!

[Pam]

http://pages.lightth...lnc11/PSchwartz

[Krish]

http://pages.lightth...lnc11/PSchwartz

Done

[Pam]

http://pages.lightth...lnc11/PSchwartz

Done

Thanks!

[giraffy]

http://pages.lightth...lnc11/PSchwartz

[Llwellyn]

$20 to Pam and $20 to Giraffy. Happy to help!

[giraffy]

Waiting for treatment yesterday... I've never seen a kid so mellow waiting for some serious doctor stuff. It's humbling, and amazing, to me.

We went for treatment yesterday, and thought she'd need a transfusion, 'cause she was being kinda bummy and walking weird and pale and sleepy. But, her numbers were all great - highest they've been in months. So, no transfusion, but an extra high dose of chemo. Great.

Anyway. We got clearance to head to the zoo this weekend, so we're gonna do that. 1 & 2 are super excited, 'cause we've, like, not left the house much in months.

[VibrantEcho]

Waiting for treatment yesterday... I've never seen a kid so mellow waiting for some serious doctor stuff. It's humbling, and amazing, to me.

We went for treatment yesterday, and thought she'd need a transfusion, 'cause she was being kinda bummy and walking weird and pale and sleepy. But, her numbers were all great - highest they've been in months. So, no transfusion, but an extra high dose of chemo. Great.

Anyway. We got clearance to head to the zoo this weekend, so we're gonna do that. 1 & 2 are super excited, 'cause we've, like, not left the house much in months.

Big all around.

[JennM]

Super cute! They say a picture is worth a 1000 words. This picture proves it. I love how sweet and peaceful her face is, while she is sitting there waiting. Kids are amazing in how well they handle things.

[giraffy]

Everything is still going really well

We're almost halfway through her toughest cycle (Delayed Intensification), and she's been great so far. No serious side effects. She should start loosing her hair again in the next two weeks or so, but it's only about an inch long anyway. . After this phase is over, at the end of June, fingers crossed, she'll be in maintenance for the next 2 years and DONE.

[mdw2006]

I am so glad she is doing well, and she is so stinkin cute!

I hope you are holding up okay mom.

[angeleyeskkhr]

Yay! I'm so proud of her!! Y'all are still in my prayers!

[Nemeweh]

Beautiful, inside and out. SO glad she's getting close to done.

[Labyrinthine]

First, I am so glad to hear she is doing well. Second, holy isht that yellow dress is adorable.

[giraffy]

She's suddenly having a really rough time. . She went for treatment last Friday, and has been pretty lethargic and achy since. The hair is shedding everywhere - which I knew was coming, but it's still disconcerting. She's lost 3 lbs since Friday. She spends allllllll day saying she's hungry (the steroid) but not actually wanting anything because it tastes weird (the chemo), so on top of the mystery ear aches, her stomach hurts.

Bleh.

[Krish]

Hang in there G and Gaby.. Things will turn better soon.

[VibrantEcho]

She's suddenly having a really rough time. . She went for treatment last Friday, and has been pretty lethargic and achy since. The hair is shedding everywhere - which I knew was coming, but it's still disconcerting. She's lost 3 lbs since Friday. She spends allllllll day saying she's hungry (the steroid) but not actually wanting anything because it tastes weird (the chemo), so on top of the mystery ear aches, her stomach hurts.

Bleh.

How long is this cycle? (you probably said already, but i forget.) I hope it wraps up soon.

[giraffy]

She's on the steroid right now, and stops tomorrow night. Then she's got a week off, and goes back Monday, the 6th for 4 days straight. The 6th will be a bunch of stuff (lumbar, 2 long IV pushes), but the next three days are quick injections through her port. Then off for a few days, and back Monday-Thursday for quick pushes, and then off for the rest of the cycle (just some at home meds). So, hopefully, after the next few weeks, it'll be easier for her.

And after THAT, is maintenance, basically where she maintains her remission status, through chemo. she'll be on oral chemo at home, with probably once monthly clinic visits, and occassional "pulses" of the steroid... For 2 years.

If EVERYTHING goes well, and EXACTLY on schedule, she'll be officially done in July 2013.

[TeeSharice]

Good Lord.... 'raffy you are pillar of strength... or at least you appear to be, I imagine you have your moments as well....I hate to rush life but for Gabby's sake I hope 2013 comes soon!!

[VibrantEcho]

Good Lord.... 'raffy you are pillar of strength... or at least you appear to be, I imagine you have your moments as well....I hate to rush life but for Gabby's sake I hope 2013 comes soon!!

AMEN. Rock stars...both of you (and the other girls and H, too, but especially you and Gabs).

[giraffy]

Good Lord.... 'raffy you are pillar of strength... or at least you appear to be, I imagine you have your moments as well....I hate to rush life but for Gabby's sake I hope 2013 comes soon!!

Ugh. I'm a mess right now. It was a debate if we should call the doctor yesterday, because of her ear. Like, if we call, we know it guarantees blood to be drawn, and I hate to do that unnecessarily. But if she ever, ever has an infection, her port is RIGHT over her heart, it could be super serious, really fast. It's a 50/50 shot, that it's a needless call and visit. Sucks. We've been SO lucky, this whole time, that she's really had minimal side effects. NO nausea, she sometimes is sleepy and lethargic, but mostly she's pretty normal. It's like a giant slap in the face when something does happen. And even this, in the scheme of things, is such a small incident. There are so many other worse alternatives.

But she never, ever complains. I mean, she does, she's 4, but never about her doctor visits, or her treatments. It's all just so matter of fact for her. Like it's totally normal in her four year old life to tell the nurse how to hook up your pulse ox or which vial of blood gets mixed and shaken. It's alternatingly impressive and depressing.

[Nemeweh]

Good Lord.... 'raffy you are pillar of strength... or at least you appear to be, I imagine you have your moments as well....I hate to rush life but for Gabby's sake I hope 2013 comes soon!!

Ugh. I'm a mess right now. It was a debate if we should call the doctor yesterday, because of her ear. Like, if we call, we know it guarantees blood to be drawn, and I hate to do that unnecessarily. But if she ever, ever has an infection, her port is RIGHT over her heart, it could be super serious, really fast. It's a 50/50 shot, that it's a needless call and visit. Sucks. We've been SO lucky, this whole time, that she's really had minimal side effects. NO nausea, she sometimes is sleepy and lethargic, but mostly she's pretty normal. It's like a giant slap in the face when something does happen. And even this, in the scheme of things, is such a small incident. There are so many other worse alternatives.

But she never, ever complains. I mean, she does, she's 4, but never about her doctor visits, or her treatments. It's all just so matter of fact for her. Like it's totally normal in her four year old life to tell the nurse how to hook up your pulse ox or which vial of blood gets mixed and shaken. It's alternatingly impressive and depressing.

(((Giraffy)))

[Labyrinthine]

Kids are amazingly intrepid.

[mdw2006]

{{{hugs}}}

Always in my prayers, I hope she is feeling better.